Borrowed this from: http://michelleoneilwrites.blogspot.com/2006/05/why-autism-sucks-parents-perspective.html
1) Your child is nervous, anxious, fighting to keep it together on a minute by minute basis.
2) Your child often loses this battle, screaming, falling apart in a full blown panic.
3) In your helplessness and frustration you sometimes lose compassion and scream at your child, or say something awful, making a bad situation worse.
4) People think your child is ill-behaved or rude.
5) People think you are a bad parent.
6) People don’t invite you for play dates.
7) Unlike kids with other developmental issues (my friend’s child with Down Syndrome has had services thrown at him since birth) medical insurance refuses to cover most therapies for autism, citing there is no FDA approval for the very therapies that are working for these kids. If you are poor, and you have an autistic child, the situation is quite hopeless. If you are not poor, you will be soon.
8) Any event that seems like fun, probably won’t be.
9) Everything’s a battle. Potty, getting dressed, etc. Getting out the door can take an hour.
10) You worry about your child’s social isolation and at the same time resent the child for socially isolating you. Then you feel guilty for thinking of yourself.
* One day I'll write a list of the gifts autism has brought to me and our family. But not this day. No, not today.
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